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September 29, 2009


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so proud of you.

Laurie Reemsnyder

This is very touching, and I admire your sharing it with others. It is in our commonalities that we see how really all of us struggle with disabilities of some sort (be they emotional, medical/physical, or mental) and try to disguise them rather than acknowledge and move forward and beyond them. You have clearly taken the critical steps toward that growth. Thank you for opening up.



Wanted to thank you publicly for taking the time to comment. Knowing you has helped me learn more about myself, and I am glad that I was able to share this part with you.

Thank you for all your support; thank you for being so understanding.

Look forward to seeing you soon.


Mandy Krzywonski

I just want to say that I absolutely love this story... I can see a lot of myself in you. All of us, or you might say the "Epilepsy Community" are a lot alike. It snuck up on us, and most of us were "healthy" and never expected something like this to happen to us. It's a scary thing to go through, and the term "coming out" is perfect for what it feels like.

I remember how I tried to hide my problems for years. Friends would ask why I no longer attended school, and I would lie and say I transferred. I didn't want anyone to know that I was "diseased". But over time you learn to rise above the triumphs in your life. The pain is no longer so painful - at least on your heart and in your mind.

Although the seizures come and go, I have realized that they don't control me. I am a growing and somewhat successful artist, I hold a self-organized charity, and life is becoming my own once again.

Epilepsy will not hold me down, and I'm glad it isn't holding you down. Wonderful story. I linked it here: http://mandykrzywonski.blogspot.com/2011/07/your-first-seizure-stories.html

bryan farley


I forgot to reply here... sorry about that.

Thank you for your compliments and thank you for posting this story on your blog. I really enjoy seeing how you are collecting our stories.

Lately, I have been thinking a great deal about how being quiet/silent interfered with my time in college and the years following. I am glad to see you being more outspoken (even comfortable) at such a young age.

Silence often robs people of opportunity, and while I know I had good reason to be silent, many of my own problems were created by my silence. People would have understood me better if I had at least tried to explain my situation... or so I think. Who knows?

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